My Brother Is Autistic And If You Want To Tell...Wednesday 25th of January 2012 08:20:09 PM
My brother Leonardo was born a May 11, 1983 in Tierra del Fuego, until his first year of life, everything had assumed it was one baby like any other, from that moment, something changed, the lack of contact with his gaze, the lack of smiles (normal at that age) and above all, the lack of speechmade that my parents started to wonder what was wrong with him...
Hundreds of analyses at the beginning, the suspicion of any pediatrician indicated us a possible small hipoacúsico, but after these tests, all in the body of Leonardo was well..., had something that away it more and more of us....
A year and half, go to Buenos Aires to meet with the then famous doctor gave the unknown and therefore feared diagnosis: Leonardo was autistic....
It was just beginning the available in the country in the 1980s and see its evolution....
With 4 or 5 years, Leo was a boy that used diapers, of course did not speak, not eating or be washed, or be changed without the help of my parents, everything seemed very difficult....
With over the years and today adequate stimulation, my brother for almost 29 years, is self-sufficient in most things, and while we will need forever, their quality of life improved a lot...
Those with a child, sibling, or a close family member autistic, know that nothing is impossible to enter her world, try,investigate, taken as a great victory each small forward, be proud of the gift that God put them in their families, and not loose never...., they need us and much.... well...
Autism
is a syndrome affecting statistically 4 of every 1,000 children; to date the causes are unknown, yet and when many years is recognized as a disorder of development.
With few exceptions, is congenital (is born) and manifests itself in children regularly between 18 months and 3 years of age. The first symptoms are usually: the child loses speech, don't see the eyes, appeared to be deaf, has obsession by the objects or shown total disinterest in social relations with others. Sometimes it can be confused with child schizophrenia.
There are multiple genetic studies that relate the chromosomes 5 and 15 with as well as others seeking to link it with biological as vaccines and poisoning of metals questions. To date, none of these studies has managed to sustain his theory and therefore can not specify the origin of the syndrome.
A simple definition would be:
" ""it is a syndrome that affects communication and social and emotional relationships of the individual."
Continue reading the article introduction to ...
Letter from a father to his autistic son
He said:
My son: Although you do not know read nor speak, less understanding of this letter, is my desire to communicate the sad thing I am without you, your school and my job keeps us physically distant but never ceased to remind you, your're my engine in my daily struggle. Is true that you're different, but that does not show my sadness. I love you and accept such as you are, if your situation requires that you receive from us all our time is because fate decided that let us fight together and perhaps never divide us. My sorrow is my selfishness and vanity, which I maintain that my world is real and yours wrong. I am not able to recognize things in a different way than that taught me my parents, not understand affection if not with hugs and gestures of love. I am selfish because do you strive to be like me, you where forced to love me the only way in which my poor mind can understand, you communicate with me using my language. Que fool I am! If it was another time, another place, another society, possibly normal be your and me of the problem. My sadness, son, is because I effort in bringing my world that I forgot to share with you these wonderful times we gozábamos together rather than you diagnosticaran as "special". My greatest sadness is because I've always loved you, lo you!, I feel you and in your silence your eyes shine to me. I, on the other hand, have not known love you the way that your understand me. The world we live in youcataloged as someone who requires attention and that's why you will need to continue to fight to be "normal", but with the heart in hand I say: I advocate with you and learn to know your world and enjoy it. Your regression will be our hour of recreation where we can play and enjoy us each other, as we had always done. I love you, Javiercito. I am sure that in the near future, we will find the midpoint of our two worlds and learn how each person to live the best of each...
CHILD autism and doctor in ARGENTINA
Talk about diets, biological , of Neurometabolismo has become a bad word in our country. Our most renowned physicians, neurologists and psychiatrists "specialists" in the field of , the pervasive development disorders, the Défict of attention and hyperactivity, "discarded" this kind of based and conceptions in which there is no scientific evidence that support them and encourage parents to abandon the search for information on the assumption that it is an alternative trade of which benefited many professionals unscrupulous that they abuse the despair and needs of parents of children affected by these disorders.
/>There is relation no between the feeding of these children and alterations affecting them? that thing... Since 1985 in which start to trabajr Center psychiatric child in Don Torcuato, then led by Dr. Guillermo Fernandez, child psychiatrist and a great teacher who introduced me in severe disorders clinic, I have seen that the theme of the food always was present, although not so clearly in many cases.
Daniel, an 11-year-old boy, was very selective with meals, separated food that gave combined in his dish, rice, vegetables on the other, and was rather reluctant to try vegetables. Sometimes her separated by the color…descartaba red and green food.
Sebastian on the other hand, between them by the smell and also was selective, only ate certain foods.
July, autistic child of 11 years, separated by color, and also by the smell and refused to eat certain foods.
Alexis, a 9-year chiquito, was a picture much more severe, only accept a mixture of nestum, milk and azucar…se refused to eat solids (in reality, not ate them), sometimes with luck and wind in favour, our chef, Anibal, succeeded in making him eat a mixture of soup with noodles crushed in the blender.
The same Leo Kanner, Austrian psychiatrist doctor, who first described the disorder in 1943, mentioned a particular behaviour of these children with regard to food and if we review the international literature on , we see that b and F: Brauner, Jeanne Simons, Denys Ribas and many other also noted a particular behaviour towards the alimetación.
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SYMPTOMS
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THE NEUROMETABOLISMO
Already in the news, Dr. Bernard Rimnland, Dr. in psychology, father of an (now) autistic adult discovered deficiencies of vitamin B, magnesium in children with and research of Dr. William Shaw demonstrate serious deficiencies to unfold certain proteins from foods due to the presence of an intestinal fungus which alters the flora, destroys the intestinal mucosa and prevents a proper processing of the food.
I myself, working in Mexico since the year 2001, proven through the teaching of many parents of children with , pervasive development, Défict attention and hyperactivity disorders, that certain foods in these disorders, ALTERAN the conduct.
Is there not a single doctor in our country which is noticed this? well, should mention a pediatrician of mar del Plata, Dr. Brosard, to which I have the pleasure of knowing personally, thanks to the problematic of his nephew, is this internalising biomedical to check a reality that not only do not we see...BUT that not NOS DEJAN see... and this has serious consequences for our children.
How to deal with autism "
It may be you tremendously expensive to teach your autistic child stop using diapers and start using the lavatory. However, it is very necessary for him and a very important step in its development. You can even generate a feeling of boredom, tiredness in the parents, but not always has to be so, with a little effort and understanding.
The first thing you have to understand is that some of the universal rules where there are to focus when it comes to teaching to go to the bathroom to a normal child, are not the same as for an autistic child. Instead, they require a progressive adaptation. We must remember that patience and determination are very important when it comes to undertake this task. It won't be easy and will take a long and difficult work.
Another thing that you need to remember is that autistic children do not react to awards or positive reinforcement as you might expect of a child who is not affected by the syndrome. If you can not rely on a positive reaction, it is better that you leave this tactic of positive reinforcement.
What is important is that you take the time necessary to communicate your child the importance of using the bathroom, because a child with will not easily understand the importance of the subject. A very intelligent way to achieve this would be to use Visual references rather than verbal. You could buy cards of colors, or posters, but in any case it is vital to make him understand why older childrenthey do their things in the bathroom, which can be a complicated concept for an autistic child.
Another obstacle that you could find is the fact that a child with have difficulties about when should go to the bathroom. "" This is probably the number one reason of "accident" related to this issue. The best way to overcome this is to establish a routine. Using a watch, takes your son to the bathroom at the same time every day. It should not be so complicated, that autistic children are prone to get along with the routines.
While you must be persistent, you must take into account also that autistic children are not too receptive to introduce changes in their lives. So you not deprimas if you do not get the results you want in the short term. If your child does not react to a strategy in particular, don't be obtuse and changes to another. If you samples prepared from the beginning, you can help greatly to your child in their own personal physical and mental development.
Follow the advice that we give up, be flexible in your approaches to your son, and persistent, and get the results you are looking for.
In Argentina you can go to A.PA.OF.A.
Various degrees of autism
It is incumbent upon the disorder more profound, refers to Kanner , occurs from birth, and meets all the criteria in the DSM IV-TR and ICD 10.
2nd. level: REGRESSIVE
There is a normal development up to approx. 18 months (more or less) and there appears a loss (regression): language, communication, social interaction, the game and appears a confinement (insulation) progressive in ritual and stereotyped behaviors.
3rd grade: high functioning
It may appear from birth (although goes unnoticed because the child is presented in almost normal development) or can manifest after the two years. Predominate obsessions by some interest in particular that captures your attention. You can keep any motor stereotypy that have as an effect difficult to keep your attention. It has widespread motor clumsiness. You can have some skill in an area of development (generally referred to capabilities of visual memory or hearing)
4To. grade: ASPERGER syndrome
Usually they go unnoticed in childhood, although her parents notice particular characteristics that doctors Miss cases are slow to recognize. They may have skills for SEQUESTRATION of the average NORMAL. They are very literal with difficulties to understand and express emotions. They say they feel without understanding the consequences of theirwords, by which many times those taken by antipáticos, malicious or despots (builders). They are solitary with great difficulty to make friends. Don't care what they say the other but if they want to be heard.
WHATS THE IMPORTANCE OF THIS DISTINCTION?
Know that type of approach is more suitable for tackling child and family, with three viable options:
Institutional approachIndividual boarding homeIntegration into regular schoolINSTITUTIONAL APPROACH
Remember that only the two first degrees, require a specialized institution, working with small groups of children of same characteristics (ideally 6 per group with A coordinator and one Assistant), who have both individual and group activities.
integration into Regular school for any of these two grades is not recommended. Predominate in the child Sensoperceptivas alterations and the invasion of stimuli in a large group can be detrimental to their learning and adaptation.
Group activities Planificadas by the Coordinator and the Assistant (learning, game, plastic, music, socialization outings, etc.)
Individual activities are aimed to optimize their learning with specialized Areas (dysphagia, educational psychology, psychology, occupational therapy, music therapy, physical education).
INDIVIDUAL BOARDING HOUSE
Based on work with techniques of behavior modification programs (ABA: applied behavior analysis) or techniquesCOGNITIVE BEHAVIOURAL (or both) and technical alternatives and AUMENTATIVAS DE LA communication (FLOOR TIME - PECS-METODO TEACCH system).
Parents are integrated and trained to implement the programmes with their children with a team that works every day (where possible).
Weekly meetings of supervision (computer) where all applied techniques and programs the child to rectify or ratify the modalities of work (Feed Back) are conducted.
INTEGRATION TO REGULAR SCHOOL
Agree that this is the ideal area with Asperger syndrome and high functioning children (grades more mild) but their particular characteristics of conduct require a unified work among the staff of the school (teachers, Regents, managers) family and person in charge of processing.
Children with high functioning may require a curricular adaptation, which means that the characteristics of the child, take into account their skills and educational requirements are lowered to their abilities with the commitment of a labour-intensive to not generate more distance between the general Curricula and Curricula disabled.
The teacher should deal with (not to worry) establish integration strategies supported by the controller unless it requires absolute attention...These children do not need to eso…pero if you need a partial support.
Work with the entire group of companions so that they understand your needs and possibilities and to contribute to their care and social development (care in the sense of do not source of teasing, jokes and discrimination).
Lack of Legal protection in Argentina
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The 24,901 disability law is advanced, but does not include all the . Modification with those proposals could lose parliamentary been in March. They want to make the State area dealing with education.
When Santiago was two years of life, his parents began to worry. He refused to be with other kids, repeated loose words, but did not say phrases on their own and their attacks of hysteria is not calmaban with nothing. After consulting with otorrinos, pediatricians, gastroenterologists and child psychologists, and not get a diagnosis with any of them, Karina Marino, mother of Santiago, was presented at an early learning centre, where he was told that her son was autistic. "Confirmed it in the Garrahan Hospital and we got to find the best treatment." "Three years later, Santiago manages to remember the names of his friends, celebrates her birthday with them, greets the people on the street and does not detract the view from above until he returned the greeting," celebrates proud Karina, who now works in the Committee on of Inadi and fight so that the 24,901 law of disability includes full coverage of the . Marino explained: "my son is better thanks to who is constantly stimulated and that exploits its potential." But few hours a week are no. "The ideal is that up to six years work at home and be taught the family to work with the boy in the spare." To achieve an evolution, Santiago routine included kindergarten with a master integrative, daily psychotherapy at home or in an Office with activities, games and sensory integration, as well as music therapy and cognitive therapybehavioral. Karina says: "the law must cover all benefits but now the prepaid are not obliged to give you the services." "If the amendment is not approved in March, you will lose been parliamentary." The Chairman of Inadi Claudio Morgado had put on the shoulder this amendment when he was President of the disability Committee of the lower House, but at its last meeting, in 2009, there was no quorum to treat the draft and was forgotten. "There are many which are not covered or are not such which are needed." "We seemed important to broaden the spectrum that will consider all the needs," explains the former Congressman. The mother of Santiago integrates - parents, one of the many associations of relatives of autistic boys in the country. There is also APAdeA (Argentina Association of parents of autistic), chaired by Horacio Joffre Galibert, father of seven children. One of them, Ignacio, is 28 years old and suffers from a severe , prompting his father to form the group. "Find out that your child is autistic is an atomic bomb which destroys everything." The family is usually crazy is and one is alone, why parents associations are important: they contain, inform and accompany them. "We must organize and bet on it", it is advised. In the ' 90s, APAdeA created the Latin American Federation of , joined the world organisation and prompted the Argentine legislation in force. "It is the best act in the world," says its President. Bachelor of Claudius Hunter-Watts, general coordinator of the Institute educational therapeutic San Martín de Porres, expands: "Except for the European Union, Canada and Australia, the Argentina has one of the most advanced laws.""The difference is, once diagnosed the problem, in those countries dealing of the education of children, while in our everything remains in the medical hands." Gustavo Dubnicky, Bachelor of science in education and supervisor of the school integration of APAdeA area, also points to the school matter: "We integrate children in regular schools because we believe that every child is entitled to receive the same information." For that, our specialists accompany each boy to school and prepare teachers until the boy is integrated. "This covers it social work but it would be interesting to be in charge of the area of education and not so much on health."
This draft law elaborated by Deputy Morgado, where popes of parents they had the
opportunity to suggest ideas and proposals which were included, and where consensus was obtained from the
most of the members of the Commission on disability, why think that it is the law more
comprehensive and complete, why accompany and support this project.
We invite all to disseminate and propose
Any information on care, advise by MP please and reply it, thank you for the time exempt in reading the post...
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